APS Awareness, Infant Loss Awareness Ribbon & APSFA Logo Lapel Pin Sales

We have new lapel pins available! We now carry 3 different types of lapel pins: Burgundy Awareness Ribbon, APSFA Logo, and Infant Loss Awareness Ribbon. The pins are as shown above. The awareness ribbon pins measure 1 inch in size. They are die struck silver with enamel colorfill. Each pin comes with a clutch back and is individually poly bagged. The APSFA Logo pins measure 1 inch in diameter. Each pin also comes with an APS information card that measures 3 1/2 inches by 5 1/2 inches and is printed on heavy paper stock. These cards would be good to leave in a doctor's office or post on a bulletin board. A view of the card can be seen below. Awareness Ribbon Pins are $5.00 each and the APSFA Logo Lapel pins are $7.50 each.

Burgundy is also the ribbon color of the following causes: Antiphospholipid Antibody Syndrome, Brain Aneurysm, Cesarean (worn upside down), Factor V Leiden, Headaches, Hemangioma and Vascular Malformation, Hospice Care, Multiple Myeloma, Thrombophilia, William's Syndrome.

Here is a sample of the information card

Awareness Ribbon Pins are $5.00 and APSFA Lapel Pins are & $7.50 each which covers shipping, tax and a small donation to the APS Foundation of America, Inc.

If you'd like extra Information cards they are 4 for $1.00.
Payments accepted are: Paypal, Credit Cards through Paypal, Money Order, Personal Check, and Cash

To Order go to: http://www.apsfa.org/fundraiser.htm

Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, fundraiser

Winter/Spring 2010 volume of our quarterly newsletter, "Antiphospho...What??" is Available

The Winter/Spring 2010 volume of our quarterly newsletter, "Antiphospho...What??" is ready to be downloaded. You can download it at the following link: http://www.apsfa.org/docs/APSFAVol16WinterSpring2010.pdf

The next volume will be coming out mid May, 2010.

Please let us know if there are any topics that you'd like our Medical Advisers to cover in their articles. We try to request topics that people are emailing about or that are discussed on our the forum. So if there's anything you'd like to see, please let us know and we'll pass it along to the medical advisers.

We are still in need of patient stories (esp about Pregnancy Loss, Men and Teens or Children), recipes, poems, related book reviews, and anything else you think would be of interest for upcoming newsletters. (book reviews, poems, recipes, articles written by family members, etc.) Please submit articles to the following email address: articles@apsfa.org.

Please follow our current guidelines when submitting an article:
• Send your story/article to articles@apsfa.org
• Patient stories and most articles should be approx 500-750 words long and contain a title
• Articles should be written at a 5th-8th grade reading level
• Please try to include a picture when submitting a patient story
• Patient stories should read like an autobiography—generally from diagnosis to present time, but it doesn’t have to

Please use previous patients stories as your guideline. They can be found here: http://www.apsfa.org/newsletters.html

If you have an idea and are not sure if it would fit, please feel free to contact us through our contact page on the website, or email us using the email address below. We are open to any suggestions. Without your help we would not be able to include an APS patient's story in each of our newsletters.

We could also use articles written by medical professionals or medical students. Please contact us if you are interested.

Please remember to check our website for any changes at the following link: http://www.apsfa.org/new.htm

Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, newsletter

Medical Alert Discount in Honor of DVT Awareness Month

In honor of DVT Awareness Month, for the month of March MedicAlert Foundation is pleased to announce a special $10 discount for individuals diagnosed with Deep-Vein Thrombosis. (Note: offer is not strictly limited to persons with DVT.)

If an individual with a history of DVT requires emergency medical attention, emergency responders need to be made aware of current medical conditions and medications so that the individual can be rapidly transported to a proper facility for DVT or PE treatment.

MedicAlert® IDs can save lives in emergencies. We offer free engraving of your medical information i.e. taking Coumadin, Warfarin, etc. - on a genuine MedicAlert bracelet or necklace along with our 24-hour Emergency Response phone number. MedicAlert s medically trained staff is always ready to answer the call and provide your critical information to medical staff during your time of need. In addition, we also notify your family contacts if there is an emergency.

To become a MedicAlert member, call 1-800-432-5378 and mention code 5804 or visit http://www.medicalert.org/dvt to save $10. The $10 discount applies to new Advantage membership enrollment (reg. $39.95) and is valid through March 31, 2010. Choose from over 100 styles of IDs, starting as low as $9.95. IDs not included in the enrollment fee.

The APS Foundation of America, Inc does not make commissions or profits from the Medic Alert. This is being posted purely as a courtesy to you, as an APS patient.

Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, Medic Alert

From the Desk of Silvia S. Pierangeli, Ph.D, Chair, APLA 2010

Dear APS patients:

We are organizing the 13th International Congress of Antiphospholipid antibodies in Galveston, TX, from April 13th-16th, 2010. We have secured outstanding speakers from all over the world that will contribute to an exceptional scientific program.

Importantly, this year we will have two patients/doctors forum discussion groups. Prof. Munther Khamashta (St Thomas’ Hospital, London, UK) and Prof. Michael D. Lockshin (Hospital for Special Surgery, New York, NY) will conduct those sessions.

Attendance/participation is free for patients. If you wish to register please check our website:
http://www.utmb.edu/apla2010.

Also patients can participate in the scientific sessions of the congress at a special reduced registration fee. Check the website for details.

Accommodation/housing registration information is also available through the website.

Schedule of Patient/Doctors Forum at APLA 2010:

Date/Time Event
Wednesday April 14th, 2010
5:00 PM – 6:30 PM
Patients and Doctors Forum: Prof. Munther Khamashta

Date/Time Event
Thursday April 15th, 2010
5:00 PM – 6:30 PM
Patients and Doctors Forum: Prof. Michael Lockshin

If you have any questions, please do not hesitate to contact us sspieran@utmb.edu or loterrel@utmb.edu.

We hope to see you in Galveston this coming April!

Silvia S. Pierangeli, Ph.D,
Chair, APLA 2010

Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, conference, Galveston, Congress, UTMB

Faces of APS - The APSFA Needs YOUR Help!

The APSFA is looking for people to submit their photos for "The Faces of APS". Details in the .pdf linked below. Please help us bring awareness to this disease to main stream media!

Deadline: January 4, 2010

http://www.apsfa.org/docs/Faces%20of%20APS.pdf

Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, faces