This is the official blog of the APS Foundation of America, Inc. It will be used to update you of upcoming foundation events as well as ideas to help you get involved in spreading APS Awareness!
Wednesday, December 03, 2008
Volume 11 of the APSFA Newsletter - "Antiphospho...What?" is NOW Available!
The next volume will be coming out in late winter/early spring, 2009.
Please let us know if there are any topics that you'd like our Medical Advisors to cover in their articles. We try to request topics that people are emailing about or that are discussed on our the forum. So if there's anything you'd like to see, please let us know and we'll pass it along to the medical advisors.
We are still in need of patient stories (esp about Pregnancy Loss, Men and Teens or Children), recipes, poems, related book reviews, and anything else you think would be of interest for upcoming newsletters. (book reviews, poems, recipes, articles written by family members, etc.) Please submit articles to the following email address: articles@apsfa.org.
If you have an idea and are not sure if it would fit, please feel free to contact us through our contact page on the website, or email us using the email address below. We are open to any suggestions. Without your help we would not be able to include an APS patient's story in each of our newsletters.
A patient story is as easy as writing your intro!
Thank you to those people who have submitted articles. If you have submitted an article and we have not used it yet, we will be using it in the near future.
We could also use articles written by medical professionals or medical students. Please contact us if you are interested.
Please remember to check our website for any changes at the following link: http://www.apsfa.org/new.htm
Thank you for your continued support!
Keyword: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, newsletter
Sunday, November 23, 2008
2008 APSFA Giving Tree
Welcome to our 3rd annual Holiday Giving Tree. This tree holds a special meaning for the members of the APS Foundation of America, Inc and the community it serves. In the past two years over $3000 were donated to the APS Foundation of America, Inc. during the holiday season.
Each ornament and present signifies a donation made to the APSFA in the name of an individual or group honored at this special time of the year. This donation will enable us to keep our unique non-profit organization operating and help promote awareness of APS.
All donations made by 12/31/08 towards the Giving Tree are tax deductible.
To make a donation and add an ornament to our tree click here: http://www.apsfa.org/givingtree.htm
Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, holiday, fundraiser
*Exclusive* 2008 APSFA Holiday Ornament
This is an EXCLUSIVE holiday ornament for 2008. This design will not be available after December 31, 2008 so get it while you can! Each ornament bought will donate $2.00 to the APSFA.
$7.99
http://www.cafepress.com/apsfoundation/1952386
Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, holiday, fundraiser
Sunday, October 12, 2008
Antiphospholipid Antibody Syndrome (APS) Focus Interview
Monday, September 29, 2008
Volume 10 of the APSFA Newsletter - "Antiphospho...What?" is NOW Available!
Hello!!
The SUMMER/FALL 2008 volume of our quarterly newsletter, "Antiphospho...What??" is ready to be downloaded. You can download it at the following link: http://www.apsfa.org/docs/APSFAVol10SumFall2008.pdf
The next volume will be coming out in November/December, 2008.
Please let us know if there are any topics that you'd like our Medical Advisors to cover in their articles. We try to request topics that people are emailing about or that are discussed on our support forum. (http://www.apsforum.com) So if there's anything you'd like to see, please let us know and we'll pass it along to the medical advisors.
We are still in need of patient stories (esp about Pregnancy Loss, Men and Teens or Children), recipes, poems, related book reviews, and anything else you think would be of interest for upcoming newsletters. (book reviews, poems, recipes, articles written by family members, etc.) Please submit articles to the following email address: articles@apsfa.org. If you have an idea and are not sure if it would fit, please feel free to contact us through our contact page on the website, or email us using the email address below. We are open to any suggestions. Without your help we would not be able to include an APS patient's story in each of our newsletters.
Thank you to those people who have submitted articles. If you have submitted an article and we have not used it yet, we will be using it in the near future.
Please remember to check our website for any changes at the following link: http://www.apsfa.org/new.htm
Thank you for your continued support!
Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, newsletter
Friday, June 06, 2008
June is Antiphospholipid Antibody Syndrome (APS) Awareness month
Antiphospholipid Antibody Syndrome (APS) is associated with recurrent clotting events (thrombosis) including premature stroke, repeated miscarriages, phlebitis, venous thrombosis (clot in the vein) and pulmonary thromboembolism (blockage of an artery found in the lung due to a clot that has traveled from a vein). It is also associated with low platelet or blood elements that prevent bleeding. Recently, however, even more disease states have been linked with APL including premature heart attack, migraine headaches, various cardiac valvular abnormalities, skin lesions, abnormal movement/chorea, diseases that mimic multiple sclerosis, vascular diseases of the eye that can lead to visual loss and blindness.
The APS Foundation of America, Inc. is the only United States nonprofit health agency dedicated to bringing national awareness to Antiphospholipid Antibody Syndrome (APS), the major cause of multiple miscarriages, thrombosis, young strokes and heart attacks. We are a volunteer run, community based 501(c)3 non-profit Public Charity organization and is dedicated to fostering and facilitating joint efforts in the areas of education, support, public awareness, research and patient services. Our URL is http://www.apsfa.org
Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, PSA
Wednesday, June 04, 2008
Volume 9 of the APSFA Newsletter - "Antiphospho...What?" is NOW Available!
The SPRING/SUMMER 2008 volume of our quarterly newsletter, "Antiphospho...What??" is ready to be downloaded. You can download it at the following link: http://www.apsfa.org/docs/APSFAVol9SprSum2008.pdf
The next volume will be coming out in August/September, 2008.
Please let us know if there are any topics that you'd like our Medical Advisors to cover in their articles. We try to request topics that people are emailing about or that are discussed on our support forum. (http://www.apsforum.com) So if there's anything you'd like to see, please let us know and we'll pass it along to the medical advisors.
We are still in need of patient stories (esp about Pregnancy Loss, Men and Teens or Children), recipes, poems, related book reviews, and anything else you think would be of interest for upcoming newsletters. (book reviews, poems, recipes, articles written by family members, etc.) Please submit articles to the following email address: articles@apsfa.org.
If you have an idea and are not sure if it would fit, please feel free to contact us through our contact page on the website, or email us using the email address below. We are open to any suggestions. Without your help we would not be able to include an APS patient's story in each of our newsletters. Thank you to those people who have submitted articles.
If you have submitted an article and we have not used it yet, we will be using it in the near future.
Please remember to check our website for any changes at the following link: http://www.apsfa.org/new.htm
Thank you for your continued support!
Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, newsletter
Sunday, June 01, 2008
JUNE IS APS AWARENESS MONTH: GET IN THE FLOW!
FOR IMMEDIATE RELEASE
Contact: Christina "Tina" Pohlman
Website Address: www.apsfa.org
JUNE IS APS AWARENESS MONTH: GET IN THE FLOW!
Individual and APSFA fundraisers will be occurring throughout the country to help promote APS awareness and help support the mission.
For more information Contact: Christina "Tina" Pohlman at Phone: 608-782-2626
Website Address: www.apsfa.org. Email Address: apsfa@apsfa.org
###
Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS
Friday, May 02, 2008
APS Awareness PSA
URL: http://www.youtube.com/watch?v=_Ib_0Gk94XI
APS is associated with recurrent clotting events (thrombosis) including premature stroke, repeated miscarriages, phlebitis, venous thrombosis (clot in the vein) and pulmonary thromboembolism (blockage of an artery found in the lung due to a clot that has traveled from a vein). It is also associated with low platelet or blood elements that prevent bleeding. Recently, however, even more disease states have been linked with APL including premature heart attack, migraine headaches, various cardiac valvular abnormalities, skin lesions, abnormal movement/chorea, diseases that mimic multiple sclerosis, vascular diseases of the eye that can lead to visual loss and blindness.The APS Foundation of America, Inc. is the only United States nonprofit health agency dedicated to bringing national awareness to Antiphospholipid Antibody Syndrome (APS), the major cause of multiple miscarriages, thrombosis, young strokes and heart attacks. We are a volunteer run, community based 501(c)3 non-profit Public Charity organization and is dedicated to fostering and facilitating joint efforts in the areas of education, support, public awareness, research and patient services. Our URL is http://www.apsfa.org
Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS, PSASunday, March 23, 2008
Volume 8 of Our Newsletter, "Antiphospho...What?" is available for download!
Volume 8 of Our Newsletter, "Antiphospho...What?" is available for download!
The newest installment of our quarterly newsletter, "Antiphospho...What??" is available for download at this link: http://www.apsfa.org/docs/APSFAVol8WinSpr2008.pdf
The next volume will be coming out in May, 2008.
Thank you to those people who submitted articles. If you have submitted an article and we have not used it yet, we will be using it in the near future.
We are in need of patient stories (esp about Men and Teens or Children), recipes, poems, related book reviews, and anything else you think would be of interest for upcoming newsletters. Please submit articles to the following email address: articles@apsfa.org.
If you have an idea and are not sure if it would fit, please feel free to contact us through our contact page on the website, or email us using the email add or email us using the email address below. We are open to any suggestions.
Please remember to check our website for any changes at the following link: http://www.apsfa.org/new.htm
Thank you for your continued support.
Saturday, March 01, 2008
Deep-Vein Thrombosis (DVT) Awareness Program
Deep-Vein Thrombosis (DVT) Awareness Program
Featuring: Melanie Bloom, National Patient Spokesperson, Coalition to Prevent DVT
Date & Time: March 11, 2008, 2:00-3:00PM Location: University of Utah School of Medicine, Salt Lake City, UT
Sponsored by: University of Utah Thrombosis Service & University of Utah 5 Med Nursing StaffIf you have any questions, please call 801-581-7818.
Click here to download a flier with more information about this DVT Awareness Month event.http://www.clotcare.com/clotcare/dvt_awareness_month_march_2008.aspx#dvtawarenessunivutah
Sunday, February 24, 2008
Blood Clots and Blood Clotting Disorders: Key Issues in Diagnosis, Treatment and Prevention
Key Issues in Diagnosis, Treatment and Prevention
Saturday, March 1, 2008
Education and Discussion Seminar on Blood Clots
Patients, Family Members, Public and Health Care Providers are welcome
This seminar is FREE but registration before February 22nd is requested.
Hosted by
The University of North Carolina Thrombosis Program in conjunction with the National Alliance for Thrombosis and Thrombophilia and Duke University Thrombosis & Hemostasis Center
Location
Hilton Hotel
Raleigh-Durham Airport at Research Triangle Park
4810 Page Creek Lane, Durham, NC
(919) 941-6000
Agenda
Click here to download the complete program.
Registration Information
This seminar is FREE but registration before February 22nd is requested as space is limited. Registration includes breakfast, lunch and materials.
To register, please log on to http://unchealthcare.org/bloodclotseminar. For questions, call Cheryl Jeanneret at 919-843-2568 or e-mail: cheryl_jeanneret@med.unc.edu.
Monday, February 18, 2008
GoodSearch.com Charity of the Day 2/28/08!
The APS Foundation of America, Inc will be featured as the Charity of the Day on GoodSearch.com on February 28, 2008!!
Please remember to use GoodSearch.com, the Yahoo-powered search engine, for all of your web searches as we receive a penny every time you do a search!!
And, please do all of your online shopping through GoodShop.com, the online shopping mall which donates a percentage of each purchase to us! Hundreds of great stores including Target, Gap, Best Buy, Barnes & Noble, Macy’s and ebay have teamed up with GoodShop and every time you place an order, you’ll be supporting us!
You can use GoodSearch and GoodShop every day, but be sure to check us out on the GoodSearch homepage on February 28, 2008!!
Sunday, February 17, 2008
New APSFA Cafe Press Coupon!
Here is a Cafe Press Coupon to help with your order:
Support APS & Lupus Awareness & the APSFA!
100% of the profits from these products will go to the APS Foundation of America, Inc.
To visit our Cafe Press Store click here: http://www.cafepress.com/apsfoundation
Brought to you by the APS Foundation of America
Keywords: APSFA, APS Foundation, antiphospholipid antibody syndrome, lupus, stroke, dvt, pe, thrombosis, clot, migraine, hughes syndrome, miscarriage, america, usa, anticoagulant, heart attack, APS
Monday, January 07, 2008
Giving Tree 2007 - Thank You!
This tree holds a special meaning for the members of the APS Foundation of America, Inc and the community it serves. And since the Giving Tree was such a big success, we will be making this an annual tradition.
CLICK HERE to see our 2007 Giving Tree
Thursday, January 03, 2008
What is New On MissionFish This Week?
Original 16x20 Oil PAINTing Winter Landscape snow tree
slim80craft2
Starting Bid: $18.99
15% donated to the APSFA
3d 7h 51m time left to bid as of this post
Original 8x10 Acrylic Painting Landscape COA blue green
slim80craft2
Starting Bid: $9.99
10% donated to the APSFA
3d 8h 23m time left to bid as of this post
Original Small Acrylic Painting Chickadee Bird coa
slim80craft2
Starting Bid: $8.99
10% donated to the APSFA
3d 8h 48m time left to bid as of this post
Original Small Acrylic Painting winter snow landscape
slim80craft2
Starting Bid: $8.99
10% donated to the APSFA
3d 8h 55m time left to bid as of this post