APS in the Community

APS in the Community

written by Seren Estrada. On April 22nd the APSFA made an appearance at the annual March of Dimes WalkAmerica event in Springfield, Virginia.

http://www.apsfa.org/docs/APSFAVol5Spring2007.pdf

June is APS Awareness Month

June is APS Awareness Month

The Proclamation is a call to action for governments around the world to increase their financial support for APS research, awareness and patient services.

Each year, the APS Foundation of America, Inc (APSFA) will revise the Proclamation to reflect the emerging issues that people with APS around the world must face every day. The Proclamation serves to give a single voice to all individuals affected by this devastating and debilitating chronic disease.

Please join the APSFA in urging your government to adopt and make June APS Awareness Month.

WHEREAS, The APS Foundation of America, Inc. has declared June as National Antiphospholipid Antibody Syndrome (APS) Awareness Month and is educating the public and medical community about this clotting disorder and is urging people to "Get in the Flow”; and

WHEREAS, APS is the major cause of young strokes, many miscarriages, both arterial and venous thrombosis, and heart attacks. It has been estimated by some doctors that one third of all of young strokes (defined as under the age of 50) are due to APS. Some doctors believe that 1 in 5 of all Deep Vein Thrombosis (DVTs), Pulmonary Embolisms (PEs), and even worse, amputations are due to APS. And it is believed that 40-50% of patients with Lupus also have APS. Women are more likely than men to be affected by APS. Some estimates say that 75% to 90% of those affected are women. In obstetrics, it is estimated by some doctors that up to 25% of all women with 2 or more spontaneous miscarriages have APS; and

WHEREAS, the APS Foundation of America, Inc is working to bring a national attention to APS as a common factor in multiple miscarriages, thrombosis, young strokes, and heart attacks is vital in order to bring a joint effort to research, funding, early detection, and eventually, prevention and cure for APS; and

WHEREAS, the mission of the APS Foundation of America, Inc. is to offer understanding and support to individuals, family, friends, and care givers of APS; to offer information about and education on APS; to support research regarding APS by keeping the latest information available and referring people to such agencies who do research; to raise funds to provide information and education through public donations, grants, fundraisers, sponsorships, and bequests; and to bring national focus to APS in the United States.

NOW, THEREFORE, BE IT RESOLVED that June is hereby designated as APS AWARENESS MONTH on which the APS Foundation of America, Inc call for increases in public and private sector funding for medical research on APS, targeted education programs for health professionals, patients and the public, and worldwide recognition of APS as a significant public health issue.

Proclaimed This Day, 1 June 2007

Remember Mother's Day!

Vibrant Tulips				Natural Wonders
Clear Day		Stunning Beauty		Pink Kalanchoe		Brighten Your Day
Help support the APS Foundation of America Your generosity has come in the form of donations, volunteering, fundraising efforts, and special event participation -- for that we can never thank you enough. When it comes time for you to show mom that you're thinking of her, we hope you can keep the APS Foundation of America in mind. As part of a new fundraising initiative, when you purchase flowers and gift baskets online from our Flower Petal.com website, you will receive delivery at no additional charge, and 12% of the proceeds are sent to the APS Foundation of America. In fact, you can visit http://apsfa.flowerpetal.com any time of the year to send flowers and gifts for birthdays, graduations, anniversaries and holidays -- with every purchase you make, you will be supporting our efforts. Thank you for your continued support.

APSFA is looking for volunteers

Hello,

The APS Foundation of America, Inc is a volunteer run organization. Without the people who run things behind the scenes, the APSFA could not provide to you the services that we do. If you are not familiar with the services we have to offer some of them are: a private online support forum which has hundreds of medical articles posted on a monthly basis, our extensive website that is constantly being checked for accuracy and updated to ensure our information is current, our informational brochures and other documents available for download, over a thousand of related links on our links pages, and a list of doctors in the USA who were recommend by other APS patients.

This time of year is extremely overwhelming for us because a lot of legal paperwork needs to be filed for our taxes and each state requires that we renew our applications so we have to focus on those. Unfortunately in doing so, we end up short in other areas that are important for continued success of the foundation.

We are currently looking for people who are willing to volunteer their time and talents to the APSFA to help us with things behind the scenes. Some of the areas in which we need assistance are as follows in no particular order

• Grant Writing
• Writing Newsletter Articles, including patient stories
• Writing Press Releases
• Writing Articles for public magazines such as Woman’s Day, Good House Keeping, etc.
• Making podcasts and videos dealing with APS
• Making Public Service Announcements for TV & Radio
• Attending related seminars/conferences
• Attending local Health Fairs
• Contacting Hospitals & Related Agencies
• Fundraising

If you are interested in volunteering to work with the APSFA in any of these areas or have any other suggestions, please email us at apsfa@apsfa.org and let us know. If you are a forum member, please also let us know your username. We will be setting up a special private area on the forum for the volunteers to share ideas and chat with each other.

Thank you for your time and continued support.


APS Foundation of America Staff
Tina, Heidi & Todd

APS Foundation of America, Inc

CoaguChekXS Strip Insert

CoaguChekXS Strip Insert

Literature clearly states that this machine has problems with APS patient and patients with the Lupus Anticoagulant. This is for the CoaguChek, CoaguChekS and CoaguChekXS. Please call technical support at 800-428-4674 for more information. Those using this machine should be getting vein draw comparisons at least every 6-8 weeks.

http://www.apsfa.org/docs/XS%20Strip%20Package%20Insert.pdf